Newsletter_ Summer 2017 @NIHRINVOLVE patients and the public newsletter #PPI #PE #PI @involveyh ‏

Andy and Janet’s story

Read Alan’s account of how he got involved in a patient participation group after falling ill. Read more

Improve our draft national standards for public involvement in research During 2016/17, Health and Care Research Wales, the National Institute for Health Research (NIHR), the Chief Scientist Office in Scotland and the Public Health Agency in Northern Ireland have been working with public contributors as the ‘Public Involvement Standards Development Partnership’. Read more Alan’s Cancer Story Read Alan’s account of how he got involved in a patient participation group after falling ill.
Read more

People Are Messy As part of the new I Am Research campaign, we are screening ‘People are Messy’ at events across England. The film engages its audiences in an informed debate around patient and public involvement in health research. The events also feature a research fair where you can find out more about how patients and the public can help shape and deliver improvements in health. Read more

Results of a study to improve Patient and Public Involvement in Clinical Trials – Methodical Study Patients and members of the public are increasingly involved in the design and delivery of clinical trials. Patient and public involvement within trials might involve helping to identify which topics should be prioritised for research, or helping to write trial information materials, such as leaflets and posters. Read more

Physiotherapy Priority Setting Partnership survey In partnership with the James Lind Alliance, The Chartered Society of Physiotherapy have launched a ‘Physiotherapy Priority Setting Partnership’ survey to find out what research is important to patients, carers and health professionals from across the UK. To find out more and to take part in the survey, click here.

RDS SE and INVOLVE partnership event Research Design Service South East and INVOLVE held a successful event to promote and strengthen Patient and Public Involvement (PPI) across the Kent, Sussex and Surrey (KSS) region. Read more

Recovery in research: valuing experiential knowledge

Article by Jo Cairns, Senior Research and Policy Officer, Alcohol Research UK

To read the article in full, click here.

Evaluating the extent and impact of young people’s involvement in National Institute for Health Research (NIHR) studies: an assessment of feasibility

A report of a project commissioned by the James Lind Alliance by Louca-Mai Brady and Jennifer Preston

To read the report in full (33 pages), click here.

Assisted dying – developing the debate

INVOLVE group member, Tina Coldham has had a piece of user led research published on the subject of assisted dying. Read more

New reports from the NIHR Central Commissioning Facility (CCF)

2016/17 PPIE Highlights Report
2016/17 PPIE Annual Report (23 pages)
2016/18 Revised PPIE Plan (17 pages)

INVOLVE Conference 2017 – update The INVOLVE conference is taking place on 28th November 2017 at Church House, Westminster. See the INVOLVE website and the #INVOLVEat21 on Twitter for tweets about the conference.

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