Learning event_launch of myTube website @neuroshef @opticaljukebox @DrEstherHobson #mnd www.mytube.mymnd.org.uk

Invitation to the myTube website launch and learning event

Date: Thurs 30th March, 13:00-15:45

Location: SITraN (Sheffield Institue for Translational Neuroscience), 385a Glossop Road, Sheffield, S10 2HQ

Attendance is FREE – but places are limited, so registration is essential. Please register at: www.mytubelaunch.eventbrite.co.uk

SITraN and Sheffield MND Care Centre recently developed myTube – an online education resource about gastrostomy tube feeding in MND, aimed at patients and carers. It is also of great value to professional carers and Health Care Practitioners. www.mytube.mymnd.org.uk 

myTube was co-created by people living with MND and their carers, clinicians, researchers, filmmakers and web designers. The approach used explored user-centred design and user-led research implementation as way of making the academic findings from the ProGas study useable for the general public and patients (one page summary of ProGas study findings: https://www.mndassociation.org/wp-content/uploads/progas-study-key-findings-and-recommendations.pdf)

At this learning event you can hear from the patients and carers who developed myTube about their experiences of taking part, as well as from the team of clinicians and designers/filmmakers who worked with them. We will also be asking you for your feedback and ideas to take myTube forwards.

The work of the ProGas team and myTube is an example of the impact work being undertaken within SITraN.

Speakers:

How Our Experiences Informed the Making of myTube + Question and Answer session

The myTube patient and carer design team – Jason & Liz Liversidge, Terry & Rose Hobbs, Trevor Leigh, Michael Hickman, Dave Booker & Brian Jackson

The ProGas Study and Developing User-led Research Implementation

Prof Chris McDermott, SITraN

The Clinicians’ Perspective on the Co-Design Process

Sean White, Home Enteral Feed Dietitian, Sheffield Teaching Hospitals

Linking myTube with the MND Association’s Information

Kaye Stevens, Information Manager, MND Association

The myTube Co-Design Process

Cathy Soreny – Filmmaker/Registered General Nurse, Becky Bartlett – Digital Strategist

Dr Esther Hobson

Evaluating and Implementing myTube

myTube was developed with funding from the MND Association, the South Yorkshire branch of the MND Association and Westfield Health Charitable Trust. The MND Association were actively involved in the development and finalisation of the website, and it is now one of their key recommended resources.

For enquiries, email neuroscience@sheffield.ac.uk, or call 0114 222 2230.

 

Kindest regards,

Professor Chris McDermott and the myTube project team

________________________________________________________________

Disabled parking and accessible facilities are available. We are unable to reserve the two disabled parking which is a first come first served basis.  Please note: parking is extremely limited at SITraN and nearby. Details of parking and public transport links can be found in the event details on Eventbrite.

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