Consultation Meeting PPI Aspect of Joint bid for YH to participate in DH 100,000 Genome Programme

Meeting confirmed:
100,000 Genome Programme Patient Consultation on the 12th March. The meeting will be held at The Source, Rooms 15 & 16, 300 Meadowhall Way, Sheffield, S9 1EA at 9.45am-12pm.

I would be very grateful if you could please circulate this email, confirming the venue and times of the consultation and ask anybody who is interested in attending to email me at amber.hemingway@sth.nhs.uk so I can register a place for them.

NIHR CLAHRC Yorkshire and Humber

Joint bid for Yorkshire and Humber to participate in a Department of Health programme called 100,000 Genome Programme, being run by a company called Genomics England Limited. We are looking to arrange a consultation meeting around this project, so we can obtain patients, public feeling around the projects aims, and our proposed ideas on meeting these aims.

The remit of the programme is to build on prior work  performed in a cancer setting (around genomic testing and feedback of results to inform patient care and management) to evaluate a similar approach for patients with a rare disease and their families and patients with cancer. The way in which the NHS is able to link a whole lifetime of medical records with a person’s genome data and the fact it can do this on a large scale is unique.  The richness of this data can help to understand disease and to…

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