Supporting Patient and Public Involvement in dementia Research
Sheffield Dementia Involvement Group (SHINDIG) evolved from previous work in NIHR CLAHRC South Yorkshire. The group meets four times a year and aims to bring together people with dementia, family carers and staff from health, social care and academic organisations. Each SHINDIG focusses on a topic relevant to health and social care and seeks to understand the experiences and views of people with dementia, with the aim of staff taking this learning back to their organisation Funding from the Clinical Research Network Yorkshire and Humber has enabled a small time limited project to support patient and public involvement in dementia research. The aim is, with a funded support worker from Sheffield Alzheimer’s Society, to facilitate small groups and discussions between people with dementia and / or family carers and researcher to help inform research topics and refine research proposals. Further details can be found on the SHINDIG web-page. The project is linked with the Translating Knowledge into Action theme of NIHR CLAHRC Yorkshire and Humber and is being led by Dr. Jane McKeown. An evaluation of the time limited project will be available in May 2015.
Psychosocial Interventions for People Following a Diagnosis of Dementia –
What is and what could be provided by local Memory Services in the future? NIHR CLAHRC Yorkshire and Humber
Within the last decade an ambitious programme of memory service development has ensued in England led by government policy focused primarily on the earlier diagnosis of dementia. However, with a few notable exceptions, the drive towards early diagnosis has not been matched by development in the provision of services to support people once they have been diagnosed, despite research findings which demonstrate that a range of psychosocial interventions can significantly improve quality of life for those with the condition and their family carers. This project addresses an important research gap in our knowledge about current and potential future models of service provision for people diagnosed with dementia. Our focus is on psychosocial (i.e. non-pharmacological) interventions offered up to two years after diagnosis to people living in their own homes with mild-moderate dementia. The study focuses on the Yorkshire and Humberside region. There are two strands to the research: firstly, a scoping review of the evidence base on the range of psychosocial interventions which have, or could reasonably be offered to people recently diagnosed with dementia and their family carers in their local area. Secondly, a survey of the clinical directors or managers of memory services across Yorkshire and Humberside in order to generate an up-to-date picture of current local service provision post-diagnosis for people with dementia through both the NHS and independent sector. The aim is to use the latest research intelligence on what interventions are currently being offered, through which service models in order to inform the development of memory services and future research agendas. For more information please contact Sue Easton – firstname.lastname@example.org