The NIHR Clinical Research Network: Stroke is today launching a new set of aphasia friendly online resources for researchers to help them to recruit and involve patients with aphasia in clinical trials.
People who have aphasia are often excluded from participating in research studies because of their communication difficulties. Patients, carers and researchers have expressed a wish for studies to try to include more people with aphasia where possible.
Gill Pearl, Project Manager, (seconded from Speakeasy) worked with people with aphasia and researchers to collate existing resources and to develop new materials to help researchers to enable more people with aphasia to participate in studies.
These resources are freely available and include:
- Study information sheets and forms designed specifically for people with aphasia
- Tips on how to enable people with aphasia to participate in studies
- A wide range of images which can be used in studies to facilitate communication with people with aphasia.
This set of resources will help researchers to write aphasia friendly information leaflets, consent forms, study guides and more.
The link to access the resources is here http://www.crn.nihr.ac.uk/stroke/pcpie/enabling-people-with-aphasia-to-participate-in-research-resources-for-stroke-researchers/
This project has recently won the prestigious NIHR New Media Competition for demonstrating the value of patient and public involvement.
We hope that researchers find the resources useful.