Event_ Motor Neurone Disease – Improving Access to Specialist Care

Scientists at the Sheffield Institute for Translational Neuroscience (SITraN) are dedicated to improving the lives of patients with Motor Neurone Disease (MND) – one of the most debilitating diseases known.

“Motor Neurone Disease – Improving Access to Specialist Care”
Sheffield Institute for Translational Neuroscience (SITraN)
on Tuesday 14th October 2014 from 2.00 – 4.00 pm

As you know, MND is a complex disease and the course of the disease can vary greatly. As patients gradually lose the ability to walk, move, talk, eat and breathe, one of our big challenges is to ensure that patients get the specialist care and support as and when they need it. Particularly in cases where the disease progresses rapidly, much-needed support often comes too late.

We would like to officially launch our new technologies developed at SITraN with patients for patients with MND to improve access to services no matter where they live:

  •  TiM  – Telehealth in Motor Neurone Disease A bespoke telehealth system in form of an app to monitor patients’ needs continuously and flag up problems to ensure patients can get the right support at the right time.
  • MyNIV – Web Resource for Non-Invasive Ventilation NIV has been shown to extend the lives of MND patients and improve their quality of life. With our new MyNIV web resource patients and their carers can access all the information they need about NIV and how to use it at home.

We would be very happy for you to take this opportunity to experience this technology first-hand and find out what it means to MND patients and how it will impact on their lives.  

You will have the chance to meet the scientists and doctors who developed the services based on patient’s needs, the team who developed the technology, as well as patients who were involved in informing the research and who will be benefit from the telehealth service and web resource.

Please email m.feigenbutz@sheffield.ac.uk to confirm your attendance by 1st October 2014.

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